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Multiple Myeloma

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The International Myeloma Foundation (IMF) sm-imfheader is conducting a study to determine the underlying reasons for the increased risk of myeloma in certain races and in family members.

This study will provide important information that will help all patients with myeloma.

The survey link is at http://survey.myeloma.org

NBCI is happy to work together with the IMF to help raise awareness about multiple myeloma among African Americans. If you have multiple myeloma or know someone affected by this disease, please ask them to complete this survey.

Multiple Myeloma Educational Videos

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Health Emergency Declaration (HED)

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Additional Resources:

CancerCare - www.cancercare.org
CancerCare was founded in 1944 in New York City with the mission of helping advanced cancer patients. From the very beginning, CancerCare provided financial assistance for home care, as well as counseling by professional oncology social workers.

The toll-free counseling line, Connect Education Workshops, and website all made CancerCare's services available to people across the country. Today, CancerCare has over 100 staff members who help more than 100,000 people each year cope better with cancer.


Patient Advocate Foundation - www.patientadvocate.org
Nancy Davenport-Ennis, Founder of Patient Advocate Foundation personally became involved in legislative reform on behalf of cancer patients while a dear friend of hers, Cheryl Grimmel, was battling breast cancer and her insurance company.

Cheryl's inspiration lives on in each initiative in which the Foundation is involved as it seeks to provide avenues of access to insurance funding for evolving cancer therapies, therapeutic agents and devices deemed medically efficacious by the medical and scientific communities through legislative reform.

International Myeloma Foundation - www.myeloma.org
Established in 1990, the International Myeloma Foundation (IMF) is the oldest and largest foundation focusing specifically on multiple myeloma. The foundation's focus is to fund research, provide education, lend support, and promote advocacy initiatives that allow collective voices to be heard.

The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure. The IMF is working with the National Black Church Initiative to help raise awareness about multiple myeloma among African Americans.

Multiple Myeloma Research Foundation - www.themmrf.org
The MMRF relentlessly pursues innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure.

As an end-to-end solution to accelerate drug development, MMRFworks to make sure the next generation of treatments is brought to patients as quickly as possible from bridging drug discovery gaps through innovative research portfolio and funding early-stage research, to developing novel business solutions that inject speed and efficiency into every step along the drug development pathway.

The Leukemia & Lymphoma Society - www.lls.org
The mission of The Leukemia & Lymphoma Society (LLS) is: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.

LLS is the world's largest voluntary health agency dedicated to blood cancer. LLS funds lifesaving blood cancer research around the world and provides free information and support services.

Key Priorities will ensure that: The Leukemia & Lymphoma Society helps blood cancer patients live better, longer lives.

National Cancer Institute - www.cancer.gov
The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

Specifically, the Institute: Supports education and training in fundamental sciences and clinical disciplines for participation in basic and clinical research programs and treatment programs relating to cancer through career awards, training grants, and fellowships.

Bone and Cancer Foundation - www.boneandcancerfoundation.org
The Mission of the Bone and Cancer Foundation is to: Provide information for cancer patients, family members, physicians, and other health professionals on the causes and treatment of cancer involving bone and advocate for increased government and private sector funding for research on cancer that involves the bone and related research areas.

American Cancer Society - www.cancer.org
The American Cancer Society is available 24 hours a day, 7 days a week, to help guide through every step of a cancer experience. Whether recently diagnosed, currently going through treatment, or caring for a loved one with cancer, The American Cancer Society provides information, day-to-day help, and emotional support every step of the way. From free lodging and transportation to help making decisions about your care,

The American Cancer Society offers programs, services, and resources in their Find Support and Treatment section to help loved ones on the journey to getting well.

This program was developed with support from Novartis